Fatigue that is chronic. I wouldn’t wish it on my worst enemy. Of all the mundane and weird ways that brain injury has effected my life – this is the way that is most crippling.
It gets to me. The grind of day after day coming up short. Of wanting to do something fun and not being able to. Of wanting to do something useful and running up against the brick wall of fatigue. I could tolerate a week, or maybe a month of it… but more than three years? Gods, what a loss. So much time lost because I didn’t have the energy to live my life. And no end in sight. That makes it doubly hard. No end in sight.
I’ve been thinking about the Spoon Theory recently. It’s a way to explain the effects of chronic fatigue to other people. I liked it enough that I decided to make a video talking about it. Give it a watch!
In case the youtube box doesn’t magically appear on your screen, the direct link to the video is: https://www.youtube.com/watch?v=UIRQevZhVMo